RECRUITINGOBSERVATIONAL

Extending Prostate Genetic Awareness, Navigation, and Delivery: The EXPAND Network

Peer Genetic Coaches for Enhancing Genetic Testing Awareness, Navigation, and Delivery Among African American Men With Metastatic Prostate Cancer, The EXPAND Network

About This Trial

This trial evaluates whether a network of peer genetic coaches is useful for addressing disparities in genetic testing and screening among African American men with prostate cancer that has spread from where it first started (primary site) to other places in the body (metastatic). While genetic testing has become central to prostate cancer care, African American men are less likely seek testing due to lack of awareness, cultural beliefs, financial limitations, fear of discrimination, and mistrust in the healthcare system. A network of peer genetic coaches may help address barriers, beliefs, and needs of African American men in the community and provide navigation to increase engagement in genetic testing.

Who May Be Eligible (Plain English)

Who May Qualify: - AIM 1: Are 18 years old or older - AIM 1: Are able to read and speak English comfortably - AIM 1: Men who have experience with both prostate cancer (PCA) and genetic counseling and testing will be a priority for training, as well as men who have considerable peer education or navigation experience - AIM 2: Are 18 years old or older - AIM 2: Are African American - AIM 2: Are able to read and speak English comfortably - AIM 2: Men who meet any one of the following criteria: (1) metastatic prostate cancer; (2) prostate cancer with high-risk features (T3 or higher, Gleason 8 or higher, node positive disease); (3) with or without a diagnosis of prostate cancer with strong family history (2 or more first-degree or second-degree relatives) with prostate cancer (particularly metastatic prostate cancer or died from prostate cancer), breast cancer, ovarian cancer, pancreatic cancer, colorectal cancer, uterine cancer, renal cancer, urothelial cancer, or upper bowel cancer Who Should NOT Join This Trial: - Patients that do not meet the inclusion criteria - Children under the age of 18 - Anyone who has trouble understanding the consent or with significant anxiety detected during the consent process Always talk to your doctor about whether this trial is right for you.

Original Eligibility Criteria

View original clinical language

Inclusion Criteria: * AIM 1: Are 18 years old or older * AIM 1: Are able to read and speak English comfortably * AIM 1: Men who have experience with both prostate cancer (PCA) and genetic counseling and testing will be a priority for training, as well as men who have considerable peer education or navigation experience * AIM 2: Are 18 years old or older * AIM 2: Are African American * AIM 2: Are able to read and speak English comfortably * AIM 2: Men who meet any one of the following criteria: (1) metastatic prostate cancer; (2) prostate cancer with high-risk features (T3 or higher, Gleason 8 or higher, node positive disease); (3) with or without a diagnosis of prostate cancer with strong family history (2 or more first-degree or second-degree relatives) with prostate cancer (particularly metastatic prostate cancer or died from prostate cancer), breast cancer, ovarian cancer, pancreatic cancer, colorectal cancer, uterine cancer, renal cancer, urothelial cancer, or upper bowel cancer Exclusion Criteria: * Patients that do not meet the inclusion criteria * Children under the age of 18 * Anyone who has trouble understanding the consent or with significant anxiety detected during the consent process

Treatments Being Tested

BEHAVIORAL

Training and Education

Undergo training and education

OTHER

Educational Intervention

Receive educational booklet

PROCEDURE

Discussion

Attend discussion with peer genetic coach

Locations (1)

Sidney Kimmel Cancer Center at Thomas Jefferson University

Philadelphia, Pennsylvania, United States