RECRUITINGOBSERVATIONAL
Foundation for Sarcoidosis Research Advanced Cures Registry (FSR-SARC Registry)
About This Trial
The goal of the study is to create a longitudinal record of patient reported outcomes for people living with sarcoidosis that maintains privacy. Patients report on the following: demographics, disease symptoms, diagnostic journey, provider experience, disease treatment, and burden of disease. Patients can also link their Electronic Health Records (EHR). The goal is to create a natural history of sarcoidosis, support research, and better understand the needs of the sarcoidosis community.
Who May Be Eligible (Plain English)
Who May Qualify:
1. English speaking
2. Consent
3. Sarcoidosi diagnosis -
Who Should NOT Join This Trial:
NONE
Always talk to your doctor about whether this trial is right for you.
Original Eligibility Criteria
View original clinical language
Inclusion Criteria:
1. English speaking
2. Consent
3. Sarcoidosi diagnosis -
Exclusion Criteria:
NONE
Treatments Being Tested
OTHER
Sarcoidosis diagnosis
Participants have been diagnosed with sarcoidosis.
Locations (1)
Foundation For Sarcoidosis Research
Chicago, Illinois, United States