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RECRUITINGOBSERVATIONAL

Characterizing Adherence to Treatment and Satisfaction With Care in Patients With Cutaneous Lupus

Cross-sectional Multicenter Study Aimed at Characterizing Adherence to Treatment and Satisfaction With Care in Patients With Cutaneous Lupus

Important: This information is not medical advice. Talk to your doctor about whether a clinical trial is right for you.

About This Trial

This multicenter study aims to evaluate treatment adherence and satisfaction of patients with cutaneous lupus, influenced by perception of the disease, fear of side effects, cost of medications and the doctor-patient relationship. Adherence will be measured by a VAS of 80% or higher on the Medical Adherence Self-Report Inventory scale.

Who May Be Eligible (Plain English)

Who May Qualify: - Patients with cutaneous lupus (pure cutaneous or subacute) diagnosed by a dermatologist and under local and/or systemic treatment for cutaneous lupus - No opposition to participation - Patient able to complete the questionnaires - Adult patient Who Should NOT Join This Trial: - Systemic lupus with multiple visceral involvement - Cognitive or psychiatric disorders preventing the smooth running of the study - Pregnant woman - Patient under guardianship/curatorship or safeguard of justice Always talk to your doctor about whether this trial is right for you.

Original Eligibility Criteria

View original clinical language
Inclusion Criteria: * Patients with cutaneous lupus (pure cutaneous or subacute) diagnosed by a dermatologist and under local and/or systemic treatment for cutaneous lupus * No opposition to participation * Patient able to complete the questionnaires * Adult patient Exclusion Criteria: * Systemic lupus with multiple visceral involvement * Cognitive or psychiatric disorders preventing the smooth running of the study * Pregnant woman * Patient under guardianship/curatorship or safeguard of justice

Treatments Being Tested

OTHER

Questionnaires

Responses to questionnaires: * Cutaneous Lupus Erythematosus Disease Area and Severity Index (CLASI) * Medical Adherence Self-Report Inventory (MASRI) * Morisky Medication Adherence Scale (MMAS4) * Visual analog scale (VAS) on the perception of disease control * Belief on Medicine Questionnaire (BMQ) * Care patient Feedback measure * Hospital Anxiety and Depression Scale (HAD) * Dermatology Life Quality Index (DLQI)

Locations (4)

University Hospital Montpellier
Montpellier, France
APHP Hôpital Saint-Louis
Paris, France
Hôpital Tenon
Paris, France
University Hospital Toulouse
Toulouse, France