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RECRUITINGOBSERVATIONAL

UCSF PANC Cyst Registry

Population-Based Analysis of Neoplastic Changes in Cystic Lesions of the Pancreas.

Important: This information is not medical advice. Talk to your doctor about whether a clinical trial is right for you.

About This Trial

Pancreatic cysts are found incidentally on 15-50% of CT and MRIs for all indications and their prevalence is increasing. Many of these cysts may be precursors to pancreatic cancer, and thus pose a substantial risk, however, the vast majority are benign. Increased detection of pancreatic cysts provides an opportunity to diagnose pancreatic malignancy at an early, curable stage yet also increases the potential to over-treat clinically insignificant lesions. This presents a clinical challenge to prevent unnecessary resection of indolent disease, with associated risks of infections, bleeding, diabetes, and costly disability. Unfortunately, there is little information on the epidemiology and natural history of pancreatic cysts to help guide management.

Who May Be Eligible (Plain English)

Who May Qualify: - The inclusion criteria for this study are intentionally broad. Eligible patients for prospective enrollment will include - Adults ≥ 30 years of age - Have a radiographic or endoscopic diagnosis of at least one pancreatic cysts regardless of treatment status, - No history of pancreatic cancer, - Can speak and read English, - Have access to a computer or mobile device (\~95% of U.S. population); and - Are able to complete an electronic willing to sign a consent form. Who Should NOT Join This Trial: - Patients who don't speak English, - Don't have access to a computer or mobile device; or - Patients who have a cancer diagnosis. Always talk to your doctor about whether this trial is right for you.

Original Eligibility Criteria

View original clinical language
Inclusion Criteria: * The inclusion criteria for this study are intentionally broad. Eligible patients for prospective enrollment will include * Adults ≥ 30 years of age * Have a radiographic or endoscopic diagnosis of at least one pancreatic cysts regardless of treatment status, * No history of pancreatic cancer, * Can speak and read English, * Have access to a computer or mobile device (\~95% of U.S. population); and * Are able to complete an electronic informed consent. Exclusion Criteria: * Patients who don't speak English, * Don't have access to a computer or mobile device; or * Patients who have a cancer diagnosis.

Treatments Being Tested

OTHER

Survey

There are no study-specific interventions, as this is a prospective registry. However, patients will be asked to complete approximately 1-2 hours worth of surveys on things such as demographics, medical and surgical history, and pancreatic cyst-specific questionnaires.

Locations (1)

University of California, San Francisco
San Francisco, California, United States